Managing personal health data is a challenge in today's fragmented and institution-centric healthcare ecosystem. Individuals often lack meaningful control over their medical records, which are scattered across incompatible systems and formats. This vision paper presents Health+, a user-centric, multimodal health data management system that empowers individuals (including those with limited technical expertise) to upload, query, and share their data across modalities (e.g., text, images, reports). Rather than aiming for institutional overhaul, Health+ emphasizes individual agency by providing intuitive interfaces and intelligent recommendations for data access and sharing. At the system level, it tackles the complexity of storing, integrating, and securing heterogeneous health records, ensuring both efficiency and privacy. By unifying multimodal data and prioritizing patients, Health+ lays the foundation for a more connected, interpretable, and user-controlled health information ecosystem.
翻译:在当今碎片化且以机构为中心的医疗生态系统中,管理个人健康数据是一项挑战。个人通常对其医疗记录缺乏有意义的控制,这些记录分散在互不兼容的系统和格式中。本愿景论文提出了Health+,一个以用户为中心的多模态健康数据管理系统,旨在赋能个人(包括技术专业知识有限者)跨模态(例如文本、图像、报告)上传、查询和共享其数据。Health+并非旨在彻底改革机构,而是通过为数据访问和共享提供直观界面与智能推荐,强调个人自主权。在系统层面,它解决了存储、整合和保护异构健康记录的复杂性,同时确保了效率和隐私。通过统一多模态数据并优先考虑患者,Health+为构建一个更互联、可解释且由用户控制的健康信息生态系统奠定了基础。