Financial stability is a key challenge for individuals living with bipolar disorder (BD). Symptomatic periods in BD are associated with poor financial decision-making, contributing to a negative cycle of worsening symptoms and an increased risk of bankruptcy. There has been an increased focus on designing supportive financial technologies (fintech) to address varying and intermittent needs across different stages of BD. However, little is known about this population's expectations and privacy preferences related to financial data sharing for longitudinal care management. To address this knowledge gap, we have deployed a factorial vignette survey using the Contextual Integrity framework. Our data from individuals with BD (N=480) shows that they are open to share financial data for long term care management. We have also identified significant differences in sharing preferences across age, gender, and diagnostic subtype. We discuss the implications of these findings in designing equitable fintech to support this marginalized community.
翻译:金融稳定性是双相障碍(BD)患者面临的关键挑战。BD症状期与不良财务决策相关,导致症状恶化与破产风险增加的恶性循环。近年来,学界愈发关注设计支持性金融科技(fintech)以满足BD不同阶段变化且间歇性的需求。然而,关于该群体在长期护理管理中金融数据共享的期望与隐私偏好仍知之甚少。为填补这一认知空白,我们基于情境完整性框架开展了析因情境问卷调研。来自BD患者(N=480)的数据表明,患者对共享金融数据进行长期护理管理持开放态度。我们还发现不同年龄、性别及诊断亚型间的共享偏好存在显著差异。本文讨论了这些发现对设计支持边缘化群体的公平性金融科技的意义。