Sensitive information is intrinsically tied to interactions in healthcare, and its protection is of paramount importance for achieving high-quality patient outcomes. Research in healthcare privacy and security is predominantly focused on understanding the factors that increase the susceptibility of users to privacy and security breaches. To understand further, we systematically review 26 research papers in this domain to explore the existing user studies in healthcare privacy and security. Following the review, we conducted a card-sorting exercise, allowing us to identify 12 themes integral to this subject such as "Data Sharing," "Risk Awareness," and "Privacy." Further to the identification of these themes, we performed an in-depth analysis of the 26 research papers report on the insights into the discourse within the research community about healthcare privacy and security, particularly from the user perspective.
翻译:敏感信息与医疗交互过程紧密相连,保护其安全对于实现高质量患者预后至关重要。医疗隐私与安全领域的研究主要聚焦于理解使用户更易遭受隐私泄露和安全漏洞的因素。为进一步深入探究,我们系统性地回顾了该领域26篇研究论文,梳理现有关于医疗隐私与安全的用户研究。基于文献回顾,我们开展卡片分类练习,识别出12个与主题密切相关的核心议题,例如"数据共享"、"风险意识"和"隐私"。在明确这些议题后,我们对26篇研究论文进行深度分析,报告研究社群关于医疗隐私与安全的学术讨论见解,尤其侧重用户视角的探讨。