We examine how neurodivergent individuals experience creating, interacting with, and reflecting on personal data about masking. Although self-tracking is often framed as enabling self-insight, this is rarely our experience as neurodivergent individuals and researchers. To better understand this disconnect, we conducted a two-phase qualitative study. First, a workshop where six participants with autism and/or ADHD crafted visual representations of masking experiences. Then, three participants continued by designing and using personalized self-tracking focused on unmasking over two weeks. Using reflexive thematic analysis of activities and interviews, we find that self-tracking imposes substantial interpretive and emotional demands, shaped by context-dependencies that challenge assumptions in self-tracking. We also find that facilitated sharing of experiences might validate emotional responses and support reflection. We identify three emotional dimensions that shape engagement with personal data in a working model of emotion in self-tracking, and discuss implications for designing self-tracking and reflective practices that incorporate peer support and better account for context and emotional labor.
翻译:我们研究了神经多样性个体在创建、交互与反思关于掩饰(masking)的个人数据时的体验。尽管自我追踪常被描述为促进自我洞察的工具,但作为神经多样性个体与研究者,我们鲜有这种体验。为深入理解这一脱节现象,我们开展了一项两阶段定性研究:首先通过工作坊,让六名自闭症和/或注意缺陷多动障碍(ADHD)参与者绘制掩饰经历的视觉表征;随后,三名参与者继续在两周内设计并使用聚焦于去掩饰(unmasking)的个性化自我追踪。基于对活动与访谈的反思性主题分析,我们发现:自我追踪施加了显著的解读与情感负担,这些负担受情境依赖因素塑造,挑战了自我追踪领域的既有假设。同时,有引导的经验分享可能验证情感反应并支持反思。我们识别出在自我追踪的情感工作模型中影响个人数据参与的三个情感维度,并讨论了设计融入同伴支持、更好兼顾情境与情感劳动的自我追踪与反思实践的意义。