Financial stability is a key challenge for individuals living with bipolar disorder (BD). Symptomatic periods in BD are associated with poor financial decision-making, contributing to a negative cycle of worsening symptoms and an increased risk of bankruptcy. There has been an increased focus on designing supportive financial technologies (fintech) to address varying and intermittent needs across different stages of BD. However, little is known about this population's expectations and privacy preferences related to financial data sharing for longitudinal care management. To address this knowledge gap, we have deployed a factorial vignette survey using the Contextual Integrity framework. Our data from individuals with BD (N=480) shows that they are open to sharing financial data for long term care management. We have also identified significant differences in sharing preferences across age, gender, and diagnostic subtype. We discuss the implications of these findings in designing equitable fintech to support this marginalized community.
翻译:经济稳定性是双相情感障碍(BD)患者面临的主要挑战。BD症状期常伴随不良财务决策,导致症状恶化与破产风险增加的恶性循环。近年来,针对BD不同阶段多变的间歇性需求,支持性金融科技(fintech)设计日益受到关注。然而,该群体对纵向护理管理中金融数据共享的期望与隐私偏好仍鲜为人知。为填补这一认知空白,我们基于情境完整性框架开展了一项因子情境调查。来自480名BD患者的数据表明,他们愿意为长期护理管理共享金融数据。我们还发现不同年龄、性别及诊断亚型在共享偏好上存在显著差异。本文讨论了这些发现对设计公平金融科技以支持这一边缘化群体的启示。