Health datasets have immense potential to drive research advancements and improve healthcare outcomes. However, realizing this potential requires careful consideration of governance and ownership frameworks. This article explores the importance of nurturing governance and ownership models that facilitate responsible and ethical use of health datasets for research purposes. We highlight the importance of adopting governance and ownership models that enable responsible and ethical utilization of health datasets and clinical data registries for research purposes. The article addresses the important local and international regulations related to the utilization of health data/medical records in research, and emphasizes the urgent need for developing clear institutional and national guidelines on data access, sharing, and utilization, ensuring transparency, privacy, and data protection. By establishing robust governance structures and fostering ownership among stakeholders, collaboration, innovation, and equitable access to health data can be promoted, ultimately unlocking its full power for transformative research and improving global health outcomes.

翻译：健康数据集具有推动研究进步和改善医疗成果的巨大潜力。然而，要实现这一潜力，必须审慎考虑治理与所有权框架。本文探讨了构建促进健康数据集负责任且合乎伦理的研究用途的治理与所有权模型的重要性。我们着重指出，应当采用能够实现健康数据集及临床数据登记系统负责任、合乎伦理研究的治理与所有权模式。文章论述了在研究中使用健康数据/医疗记录相关的国内外重要法规，并强调了制定关于数据访问、共享及利用的明确机构与国家指导方针的迫切需求，以确保透明度、隐私保护及数据安全。通过建立稳健的治理结构并促进利益相关方对数据的所有权，可以推动协作、创新与健康数据的公平获取，最终释放其全部潜能，实现变革性研究并改善全球健康成果。