Data is everywhere but may not be accessible to everyone. Conventional data visualization tools and guidelines often do not actively consider the specific needs and abilities of people with Intellectual and Developmental Disabilities (IDD), leaving them excluded from data-driven activities and vulnerable to ethical issues. To understand the needs and challenges people with IDD have with data, we conducted 15 semi-structured interviews with individuals with IDD and their caregivers. Our algorithmic interview approach situated data in the lived experiences of people with IDD to uncover otherwise hidden data encounters in their everyday life. Drawing on findings and observations, we characterize how they conceptualize data, when and where they use data, and what barriers exist when they interact with data. We use our results as a lens to reimagine the role of visualization in data accessibility and establish a critical near-term research agenda for cognitively accessible visualization.

翻译：数据无处不在，但未必人人可及。传统数据可视化工具及设计指南往往未主动考虑智力与发展性障碍（IDD）群体的特定需求与能力，导致该群体被排除在数据驱动活动之外，并面临伦理风险。为理解IDD群体与数据交互的需求与挑战，我们与15名IDD个体及其照护者开展了半结构化访谈。通过算法化访谈方法，我们将数据嵌入IDD群体的生活经验中，揭示其日常生活中隐而未现的数据接触场景。基于研究发现与观察，我们归纳了该群体如何概念化数据、在何时何地使用数据、以及在数据交互中面临哪些障碍。以研究结果为透镜，我们重新构想可视化在数据无障碍中的角色，并提出了面向认知无障碍可视化的近期关键研究议程。