This manuscript is a research resource description and presents a large and novel Electronic Health Records (EHR) data resource, American Family Cohort (AFC). The AFC data is derived from Centers for Medicare and Medicaid Services (CMS) certified American Board of Family Medicine (ABFM) PRIME registry. The PRIME registry is the largest national Qualified Clinical Data Registry (QCDR) for Primary Care. The data is converted to a popular common data model, the Observational Health Data Sciences and Informatics (OHDSI) Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM). The resource presents approximately 90 million encounters for 7.5 million patients. All 100% of the patients present age, gender, and address information, and 73% report race. Nealy 93% of patients have lab data in LOINC, 86% have medication data in RxNorm, 93% have diagnosis in SNOWMED and ICD, 81% have procedures in HCPCS or CPT, and 61% have insurance information. The richness, breadth, and diversity of this research accessible and research ready data is expected to accelerate observational studies in many diverse areas. We expect this resource to facilitate research in many years to come.
翻译:本文为研究资源描述文档,介绍了一个新型大规模电子健康记录(EHR)数据资源——美国家庭队列(AFC)。AFC数据来源于经医疗保险和医疗补助服务中心(CMS)认证的美国家庭医学委员会(ABFM)PRIME注册中心。该注册中心是美国初级保健领域最大的国家合格临床数据注册中心(QCDR)。数据已转换为广泛应用的通用数据模型——观察性健康数据科学信息学联盟(OHDSI)观察性医疗结果合作组织(OMOP)通用数据模型(CDM)。该资源涵盖了约750万患者的9000万次就诊记录。所有患者均包含年龄、性别和地址信息(100%覆盖),其中73%提供种族信息。近93%的患者拥有LOINC编码的实验室数据,86%拥有RxNorm编码的药物数据,93%拥有SNOWMED和ICD编码的诊断数据,81%拥有HCPCS或CPT编码的手术数据,61%拥有保险信息。这一可直接用于研究的丰富、广泛且多样化的数据资源,预计将推动多领域观察性研究的开展,并有望在未来多年持续助力学术研究。